Showing posts with label expectations. Show all posts
Showing posts with label expectations. Show all posts

Sunday, May 5, 2013

Making Announcements - Getting Personal

The time is getting close where we will start making our announcements to friends and family that aren't already in the know. I think...

http://mashable.com/2012/04/18/social-media-and-the-news/

We keep putting it off. At first we wanted to wait until after the first trimester when the risk of miscarriage was still quite high. Week 13 rounded the corner and we decided to wait until we saw the specialist. Once that occurred we were introduced to all the bad things that could happen and decided to wait until after the initial tests. Then we wanted to wait for more tests (ie, the amnio). We still haven't gotten the results from that yet, but we expect them and another ultrasound this week. If all goes well, we will start widening our circle of who we tell.

But when do we make the announcement to our big group of friends??? Is that something you do on facebook? That would seem weird, but it would be equally weird to deal with people who want to know WHY we didn't let them know, when they start (hopefully) seeing baby pictures. Perhaps even more so. My worrying mind can just imagine people thinking "didn't we just see her at so-and-so's drinking wine, flat belly and all?" (Ok "flat belly" may be an exaggeration, because after 3 IVF treatments in 1 year my belly is no longer flat, but I am working on it.)

Ahhhhhh and all the questions we will get from so many people. I don't mind them from our-close friends and family - heck most of them already know my SIL is our surrogate or at least know that we have been trying with surrogacy - but what about the regular friends? We have A LOT. The idea of people publicly posting awkward questions or privately emailing me in droves, and then imagining people gossiping behind my back, is quite horrifying. Even if they don't. Which they will, because it's human nature.

Plus - I really don't like people knowing my business unless it's on my terms. The idea explaining I had cryoablation surgery many years ago (and many other things) makes me cringe. Not explaining it means people will ask if we adopted, or worse, will think my husband cheated. (Not that there is something wrong with adoption,but it is a particularly hard discussion for me because of my own history with it. For the record, I think adoption can be wonderful.) From what I can tell, very few people know the ins-and-outs of IVF and even less know about surrogacy. I'm sure some people would even privately wonder "did she just not want to get pregnant?" as I see written over and over in comment sections of India surrogacy articles.

On the other hand, I think it's important to share my story; if not just to help others. Recently I had a male friend get married and I realized that they would want to have kids. The wife just turned 40 and I could tell that they didn't have the faintest idea what AMA was. Even a friend whose wife went through IUI a few years ago (took on the first try, but they had several miscarriages prior to that) seemed blissfully unaware of the difference between a woman getting pregnant at 38 and one getting pregnant at 41. They were talking about putting off the second child for another year or two. Of course both of these friends I gave the 5 minute run-down, but forcing your experience down someone else's throat is quite different than someone else reading your story because they want to. In fact, I distinctly remember being MAJORLY offended when various women told us that we better get it in gear if we wanted kids. (Ahhhhh - how naive we were back then!)

Oddly enough, I happily shared my story with the lady at the bank the other day who was genuinely interested. It started out simple enough when I was getting our house re-fi papers notarized and the bank lady asked if we were planning on having any children.  Not having told many others I was ready to burst with the news to SOMEONE that we have twins on the way. Still, I didn't want to startle the woman so I eased into it with the ole ego-boosting  "well I have I 21-year old" that always gives me the shock face I adore (wasn't always the case).

From there, the conversation naturally slipped into "we have twins on the way" which led to surrogacy, then our India adventure, and then explaining the entire IVF process. She was a young lady (26) and apologized for being nosy, but she was so sweet and thoughtful in her questions. She explained her aunt was in her late 30's and seemed sad that she may never have kids. She also explained that some women in her family were pressuring her to have more kids now, while she could, even though she wasn't ready. In the end, she told me I should be on Lifetime to help other women. (Her manager had been on Lifetime for something else - lol.) That conversation was so easy and the young lady made me feel great, but I know that isn't always the case in these situations.

The easy answer to addressing friends' questions would be to point them to this blog, but I really don't feel comfortable with that. At all. I've been brutally honest here and I don't need casual acquaintances knowing things of my past or people scouring through to see if they are mentioned. That's a can of worms that I really don't need on any level. I have very close friends that I have never mentioned here and at least one that I have spoken unfavorably about. This is a blog of my experience, the good and the bad, and rather than worry about what I write in the future or sanitizing things I have written in the past, I'd prefer to keep it that way.

So what do you think? How do I tell the masses? We are fortunate enough to have quite a large social circle, mostly because of my husband, but that certainly leads to uncomfortable situations about things such as this. What to do what to do? What would you do (or what did you do)? Any advice is surely appreciated. 

Saturday, April 6, 2013

All is Well - Hard Things to Think About

Ramble Warning. 
Depressing Statistics for Women with AMA Warning.
VERY Uncomfortable Discussion about Chromosomal Abnormality Warning

I wrote this over a week ago, but was afraid to post. It's been on my mind for awhile and still is. Since this is a blog about my experience and feelings during my journey, the honest thing to do was to post it. 

After a year of infertility treatments and tut-tuts about my age from a multitude of medical professionals, I've become a little more sensitive than usual regarding my age. To compound the problem, a years worth of infertility treatments (3 IVFs in 8 months!) and the stress that goes along with them has left it's physical and emotional mark in more ways than I care to mention. Now I am faced with the added realism of doctors constantly calling me 41 BEFORE my 41st birthday, because they have to consider the age of the embryos  when they are born. Why you ask? Because that is what counts for problems that may arise.

In the land of infertility, 41 is old and can cause a multitude of issues - age related things that most of us women with AMA didn't think of when we started down the dreaded infertility path. Besides decreasing our ability to get pregnant, our miscarriage rate increases, as does the chance that there will be a chromosomal abnormality. This last part is the current worry area we are visiting. Depending on where you look, our odds of having a baby with a chromosomal abnormality is somewhere between 1 in 13 and 1 in 15. (Note this is with fraternal twins, much different for singleton pregnancies.)

On the upside, the odds that both will have an chromosomal abnormality are about 1 and 900. 

If you've gotten this far and are totally against fetal reduction in all cases - then you should stop reading here. I will have total respect for your beliefs and how they pertain to you, but I ask the same consideration for me. All of us in the land of infertility go through our own personal hell, and we really don't need judgement heaped upon us for the litany of hard things we have to consider every step of the way.

Since I am of "advanced maternal age" AND we are having twins, we are considered a high risk pregnancy and our surrogate has to see a perinatologist. We visited the new OB/GYN a few weeks ago (who won't be our actual OB/GYN, but that is for another post) and had our first visit with our Perinatologist last week. Building up to that visit, both my husband and I researched the heck out of the tests we would need to consider.

The consultation did not go well.  

While I didn't think about it before, our Perinatologist must be a part of the same religious medical group as the OB/GYN practice (not uncommon here in the south). This essentially means he Was. Not. Happy. when we were trying to get information about options if the worst case scenario happened and one of the fetuses has a chromosomal abnormality (CA) that we feel we could not deal with. These can range from things that would result in a stillbirth to death after a few weeks of life to some that we feel the quality of life would be extremely poor. Termination is somber idea for us who have fought so hard for life. 

At the doctor's appointment when discussing the CA tests, I uttered a question about "termination" and the doctor stopped short and very ADAMANTLY told me they DO NOT do that there. (Even our OB/GYN didn't act like he did.) Based on his attitude after that, we all began to have a genuine concern that he was misleading us on several counts. Tests he up-sold recommended to us (instead of amniocentesis) that we later found out may not be recommended for twins or donor eggs (which in this case, my eggs would be considered the donor eggs.) This is especially odd since I'm sure twins takes up a large part of his practice. Additionally, based on information we knew, some of his numbers for risk were off. (Example of that is below.) Finally, he suggested dates for the amniocentesis that would not allow us to get the information back in time (for GA law) should it be one of the items that we would consider termination. 

When I asked him directly about risk percentage of CA for what he was recommending - cell-free fetal DNA that tests for 3 types of CA - versus and the difference of the additional CA items discovered with amniocentesis, he assured me that miscarriage through amniocentesis was greater. (We do not have confidence that he was honest here.) 

My hubby says this is confusing how I say it, so I'll try to clear it up.
---------------------------------------------------------------------------------------------------------
(Chance of any CA (for 1 baby) in my age bracket with twins = 6-8%) - (Chance of one of the 3 types of trisomy that his test is for - variable X) 
Is this > (Risk for miscarriage for doing an amniocentesis (.3-1%)?

or 
is 7%-X > 1%

So theoretically, if the cell-free fetal DNA tests only 4% of the CA's, that still leaves us with 2-4%  untested risk. In my mind, that is a higher risk than the .3-1%  from amnio. This isn't even including the other things amnio tests for that are non-CA. That 4% is probably pretty close estimate. 
---------------------------------------------------------------------------------------------------------

All of this is a major problem, but to get a new specialist would could cause us to run past the time period that were are so precariously balancing in at the moment.  

Don't get me wrong, this is not something either of us takes lightly. I shouldn't even have to justify it as everyone has their own limits - and yet I still feel an overwhelming need to do so. We have gone through so much and if we had to make a decision like this, it would be horrific. But that said, both my husband and I are on the same page on what we would and wouldn't do when faced with certain results for certain tests. And our SIL/surrogate agrees as well.

Not only do we have to consider what we could handle at the birth of a child (death being a major one), but also as we age. Both of us have had a lot of experience with people important in our lives that have some very severe issues - both young and old. Enough that we wonder what will happen when everyone is much older and unable to physically care for them. With our siblings (and us) all in an older age group, the option of family being able to step in probably would not be available to our babies. Unless I left the burden to my son, which I don't think is fair at all. 

A child born with a severe chromosomal abnormality can have devastating effects. More than likely one parent will have to not work, which can be a big blow in income. Add the costs of medical and 1000 other things normal people don't think about, and any savings could be wiped out in a very short time. It only money right? Yes and while that may be true, older parents entering their 70's and 80's may have zero money left over to care for their child when they no longer can (much less themselves). They are then faced with the VERY REAL probability of a mentally and physically disabled child that will be sent to a state run facility. Knowing the child will spend the rest of his/her life potentially living in hell is just not something we are prepared to risk. 

So while I absolutely despise that we have to think about things like this, I guess I feel it's important to share. Because I think it's important we all know these things before we jump in.* That may not change our minds, in fact I can almost guarantee in most cases it won't, but maybe if someone is on the fence about other decisions (such as donor eggs)** then the information will be important to them. We all get so caught up in the idea and worry of having a baby, that we forget some of the other, very real, life changing concerns.

In my mind, there is no right or wrong answer with these tough decisions. I place no judgement on those of us that don't even want to know about things like this. Nor do I judge those who decide things differently than we would. In the end, we are all left with our own decisions and we must choose what we can live with 1, 5, 40 years from now - not what matters to outsiders looking in.

Sigh. I told you this would be a rambling post. We had such a small chance of getting pregnant. Heck, our chance of miscarriage was higher than our chance of getting pregnant. If we can just make it past the amniocentesis, then I will be able to breathe. For a little while at least. 


*In our experience, which is A LOT of different medical professionals, we really did not get enough information about all of the risks for my age. Really the only one that was relayed to us was our lower chance of getting pregnant. I'm not sure if we would have made a different decisions, but I think medical professionals need to do a much better job of informing their patients about these risks. 

**Even this does not guarantee that all will be fine and dandy as many here in IF blog land can attest. 

Tuesday, February 12, 2013

A Ferris Wheel

From: http://www.tumblr.com/tagged/devil%20in%20the%20white%20city?before=17

Recently I read: The Devil in the White City: Murder, Magic, and Madness at the Fair that Changed America, an intriguing, historical novel about the World's Fair in Chicago in 1893. While I will spare you even a brief review (ok fine, for the most part I liked it - there are you happy?), I was fascinated to get the history behind the wonderous Ferris Wheel - a staple to every decent fair I have ever known. In this well researched story, the Ferris Wheel, though only briefly mentioned, so perfectly captures the feelings that I am going through right now. From the build up of delays and potential problems to the exhilarating ride to horrible possibilities of things that can (and do) go wrong to the remorsefulness that comes with loss and success.

Similarly,
I'm nervous.
And excited.
And scared.
And guilt-ridden.

Who knew that after getting our initial hCG values (and good ones at that), that I'd still feel like a bundle of nerves? In the Land of IF*, a positive pregnancy test really is just extending the anxiety from the 2ww. Yay we are pregnant with a good hCG! Oh crap - I hope it doubles in two days. Yay it went over double! Oh crap, I hope it grows as expected by next blood test. Yay! It grew as expected! Congrats - you get a new 2ww till ultrasound, where hopefully, you will see a heartbeat. It feels like every milestone comes with new nerve-shattering waits.

But I'm also excited. For the first time ever, I'm considering shopping. On the surface that seems like a trivial thing, but as fellow IFers** know, it really isn't. There's always the thought "What if I buy something and then something goes wrong?"  In March, we have a HUGE, local community mom consignment event coming up, and if everything is still ok, then I'll feel like I can purchase some things. Not big things, but SOME things. A pleasure I have completely avoided on all of our tries (with the exception of 1 book last year). There are other things I am excited about, but the idea of allowing myself to shop is a pretty big deal.

Being scared is another emotion all together. There are so many things to worry about. Will the pregnancy make it? What if there are twins? What if there are more??? What if the baby(ies) are born early? What if there are medical problems afterwards? As the pot grows bigger, it feels like any loss would be that much more.

Lastly, I feel guilty. Of late, I have not read as many success/pregnancy/baby blogs as I normally do and even ditched a baby shower a few weeks ago that came smack in the middle of my 2ww. I just needed a break from everyone else's "Woo hoo". Quite frankly, I was trying to simultaneously prep my self for a bad outcome, while still holding out some hope. Now we have had a few "woo hoos" of our own and I think of all the other individuals out here in blog land, men and women who have been through so much more than me, still waiting. And that makes me sad. And it makes me feel guilty. Like a weird survivors guilt where circumstances could change and put me right back were I was before. Guilty for my current feelings of success that happened while I was shamefully avoiding other's.

The ride of infertility is much like that first ferris wheel created in 1893. Not only does the ferris wheel go up and down on it's circular ride, but the details before, after, and in-between can't be ignored. The marvel of it all staying together, even when massive numbers of nuts and bolts fly off, is awe-inspiring. On so many levels, each successful turn is to be admired.

*When I refer to the Land of If, I mean it from a metaphorical perspective. I am not quoting the book, but I do like to place a link to it because I feel in this phrase, Melissa Ford so perfectly captured the seclusion often felt by our community: people dealing with infertility. As such, I like to give her credit.

**IFers: people dealing with infertility. 

Saturday, February 2, 2013

Don't Bring It.

We received our 3rd beta test result today. For those of you keeping score:

January 27th: 130
January 29th: 365
February 2nd: 2268!

I have no idea what that means except that our nurse says our numbers are fantastic. On Tuesday we asked about singleton versus twins - the nurse I spoke with said right now they are considering it a singleton, but we won't know until the ultrasound. So what did we do? What any reasonable hopeful-parents-to-be would do: pestered our favorite nurse. 

"It is very, very difficult to know whether there could be more than one from bloodwork alone - and I have been wrong enough times to wait until the ultrasound rather than guess."

Fair enough. I guess I can stop obsessing with Dr. Google.

http://veterinarynewshub.com/wp-content/uploads/2012/09/Dr.Google.jpg

Oh who am I kidding? Just a few more peeks. Apparently we've reached a small milestone with our hCG of 2268. Between 1000-2000 you can see a gestational sac on an ultrasound. 

According to this IVF calculator, we are 4 weeks and 6 days pregnant with a due date of October 6th. 

If this was a normal milestone or challenge in my life, I'd be all 
"WOOOOOOOO HOOOOOO! We've made it this far - BRING IT <insert challenge here>!"
I think this time I will be all "woooo hooo. Don't bring it. Unless by "IT" you mean baby in 9 months. Or 10 months. Or whatever weird counting system they have going on these days that will result in a crying, pooping, bundle of joy"

Wonder what my 14 year old self would have thought of that statement from my 40 year old self? Probably just happy I'm still all weird. 

Monday, January 21, 2013

60 Second Update

Embie we didn't transfer didn't make it. They left a message on my phone and I didn't feel the need to call back. It didn't upset me - not one bit - totally expected.

Tomorrow I go in for my check up appointment. I've been a little worried because I am still cramping, but I guess I shouldn't be surprised since I'm prone to infection AND I didn't take my doxycycline the night before my transfer like I was supposed to. Told the nurse on the day of transfer (when she asked about it). Completely slipped my mind to take it even though I told myself probably 20 times (and my husband at least 5)! Had to take it after dinner and dinner was after the reminder alarm went off. Damn you ADD. Oh well. I guess if I had to forget one medication -that was the one to forget.

G.C. says she is doing great except for a sore bum. LOL. I feel so bad for her. She told me that the night of the first shot that she kept procrastinating when her husband tried to give it to her. Made him keep practicing on the orange an hour past the time she was planning on taking it. Then when she finally got the shot she couldn't believe that she had been so worried over it that whole time. That it was nothing compared to what she had built up in her mind. Still, too many shots will give anyone sore spots. There wasn't an unbruised spot in my prime belly-shooting area by the time I was done. Hurt to wear pants. Sans pants (or skirt) probably isn't good for the office. Now that I think about it - why didn't I wear a dress???

That's it for now. Tomorrow is checkup for me and Sunday is prego test for G.C. Some moments I don't think of it at all and other times I wonder how wise it is troll craigslist for my dream crib. Well "troll" as in window shop, not as in act all douche-y. Why am I explaining myself? You all knew what I meant. I starting to ramble which means I need to hurry up and get to bed. Still a ton to do.

Night all!

Sunday, January 13, 2013

6 Embies

We have 6 embryos. We will see how many continue. (4 of the eggs were immature). The embryologist said if they do well, then they might consider doing a 5 day transfer instead. We told her that we are not sure if we want to take that risk and to have the doctor call us tomorrow when we know more on how they are doing. 

Pros of going to 5 day: out of the embryos that survive, you can choose the very best ones to implant, resulting in a higher rate of pregnancy.
Cons of going to 5 day: embryos that could result in a pregnancy may not make it to 5 day outside of the womb. We could lose them all and have nothing to transfer. 

Trying to get less excited. It's hard. 

Friday, December 21, 2012

Mad Dash to the Finish Line

I don't know who Mr. Pipo is, but this image rocks.
You can get it here: http://commons.wikimedia.org/wiki/File:Mr_pipo_clock.svg


Yea, yea, yea. The ole "I've been a blogger slacker" post. The "I've been too busy" post. The "Too emotional with all that's going on in the world" post. Whatevs. Get to it.

We are on full throttle for surrogacy to start next cycle - which means hopefully the end of this month. (Crap - no drinking on NYE!) I've been a mess trying to get everything done in time, but we really wanted to pay as much as we can this year for tax purposes. Since I didn't work for 8 months this year, much more is applied. 

Plus, let's be real, every month for me counts now. My AMH is like .7 and my FSH is 12.7. Not good. Not horrible, but not good. This will be the last shot with my eggs - period. If this doesn't work I'll crawl into a hole until we are able to consider the donor egg option. 

I have to say that having my first 2 surro cycles in India did not prepare me for the complicated mess I would  have to endure here in the US. In India we just had to show up and they directed us for everything else. Here we are on are own and have to stay on top of things like a frenzied squirrel. Crimmy, I'm even going to have to give myself shots. With my ADD, this is not encouraging. 

Some of the things I've been juggling: 
  • Coordinating 4 individual schedules with tight deadlines on when specific things have to be done. Guess who's schedule always gets the shaft (to be expected.)
  • Countless phone conversations occurring middle of the day, for a length of time, that has me leaving my trusty cubicle to go hide talk in a conference room. Lest my cube mates get to hear me go on-and-on about the FDA required STD tests I have to take. "Yes, I need you to add Chlamydia  Gonorreia  HIV, Hepatitis  PPD, ... to my blood order. Oh I'm sorry, you want me to repeat that LOUDER for the 3rd time? Ok."
  • Working with 3 different pharmacies to find out which can give me the best price, without sacrificing reliability/comfort level of getting all the right things at the right times. All of this again on the phone during business hours. All pharmacies have been given the Rx by doctor and are ready to ship ship ship. "Yes, I'm confirming the order. OH WAIT, you are with whom?"
  • Phone interviewing lawyers with experience in surrogacy to see who can meet our tight deadline (are you sensing several themes yet?) 
  • Going BACK AND FORTH with my new primary care physician office to try and convince them to add STD blood tests to my blood order for my physical. This way there is a chance insurance will cover it, but I had to go back and forth with them for about 2 weeks. Otherwise it's a couple grand out of pocket.
  • Getting a physical so that additional items will be covered under insurance that wouldn't under my RE.
  • Multiple doctor visits. Blood drawn yesterday AND today because I had to use 2 different labs. Trying to juggle all these without raising a flag (hopefully) at my new job has been an incredible feat. I'm a contract employee and want to go perm when my contract is up in April. 
  • Psych evals - and while I appreciate the "concern" over my emotions, it really was a total waste of time/money for my husband and I. Everything that was discussed in the group session we had already discussed with them privately. I totally "get" why you would want to have one with the surro and the surro spouse, and even a group one, but I don't think every IP couple needs to have this done. Especially if you've been through the process before (even in another country). Thankfully the doctor put the ones for hubby and I as a "family counseling" code - hoping insurance will at least cover that. 
  • Trying to get surros insurance documentation to make sure there is no surrogacy exclusion. Not their fault, but company's fault it is taking so long. 
There is more I am sure, but between balancing that and everything else in my life, my brain is kinda fried at the moment. I still have Christmas shopping to complete. Hell, I haven't even gotten all my cards out yet. 

On a Happy Happy note. Insurance covered a HUGE portion of my fertility medications. The pharmacy (Village Fertility) checked on a whim for insurance coverage (even though I told them it wouldn't be covered) and apparently a big chunk was. Had to pay just a little over 1K out of pocket - which is awesome since it was looking to be about 6.5K. She explained that even though we have BCBS for medical (THE SUCK for infertility treatments), the pharmacy is different and is quite good. Covered under Medco, formerly Express Scripts. I guess the lesson is: always check to see if insurance will pay. Even when you are sure they won't. 

On an unhappy note - I had no idea that the attorney was going to be so much. 2500 for the surro agreement (REQUIRED) and then another 4K if we make it to the second/third trimester. They have to go to court and petition that our names are put on the birth certificate. Otherwise we would have to adopt our own child. GAH! Oh well, I guess we should totally HOPE/PRAY/RAIN DANCE that we are so fortunate as to get to shell out the money in the future. That would be a good thing - right?

That's it for now. And to prove how busy I am at the moment, I'm going to publish this after only "checking" it once for mistakes. That's HUGE for me. Normally I read it and change it 10x. THAT'S HOW BUSY I AM. Or crazy. You choose. 

Tuesday, December 4, 2012

Where Can I Get My Drugs?

No seriously. Who has the hook up? I need advice on who the cool [read: GOOD], reliable, fast online/mail order companies for fertility meds? Fairly certain that the email I just read from our clinic was saying that I will need to order mine (and our surrogates) in the next few days.

Here was the reply when I asked about getting the meds:

Once you are ready to get started, I will send this prescription to a mail order pharmacy and they will call you to set up payment and shipment of the medications.  You will need some of them within 14 days of starting a cycle.  The others you will need a few weeks after that.  I would recommend getting the meds as soon as you are ready to proceed.

Honestly I don't know if that means 14 days before my next cycle or 14 days after my current cycle start - which now that I think about it, is the same thing really. Since my period started on Sunday, that means I need to get the full list and make the purchases.

I hate having to rush rush rush everything, but it looks like that's where we are now. Have no idea about what happens with being able to claim this on taxes for anything that spills over to next year. I know you have to reach a minimum percentage of your income to claim medical, but can you only claim what is OVER that percentage, or do you to claim the first part too? I'm trying to figure out how vital it is we make our Dec 31st deadline. It's vital from an old eggs perspective, but I don't know how much it will end up costing us if we can't claim it all on our taxes this year.

Any tidbits you guys can throw my way I would really appreciate. The last two days of trying to balance 4 individuals' schedules for treatment, make sure everything is asked/answered for our upcoming cycle, work, getting a plumber out (yay! We have water!), make a community meeting that we will be a named plaintiff in, more work, AND cart my 12 year old Min Pin back and forth to the vet for dental surgery (9 extractions!) has my head spinning.

(BTW - my Min Pin is a total hillbilly now. All of his front teeth, bottom and top, were rotting due to age and not enough space, and had to be removed. He won't show me now and is working the cheese angle.)

No wonder I need a good hook up for meds. Give me a heads-up and I'll keep it on the D-Lo. 

Sunday, December 2, 2012

In Today's Surrogate News...

image from: here


The long awaited surrogate news is here! 

Our surrogate and her husband are still gung-ho - YAY!!!! Ms L went for her hysteroscopy and HSG testing Thursday and Friday. We haven't heard the official news from the clinic yet, but she is under the impression that everything came back great. Double yay! I'll let myself have that little bit for now.

On the flip side, my surrogate and her husband, both whom are very close to us, are having trouble quitting smoking. If she doesn't quit soon, then it will be a no-go. Quitting smoking is super-tough and she feels awful that she hasn't been able to quit yet. Was there myself once-upon-a-time and it sucks.

We went ahead and asked them if they wanted to try Chantix (we'd pay for it) and made sure with our clinic that it would be ok for them to take. They both wanted to give it a shot and we were happy when our RE said it was ok. We were about to go meet them on Saturday when our water heater expansion tank sprang a leak. Fortunately showered just minutes before the leak was discovered... 

Anytime you find a large puddle of water on your floor you should probably be concerned, but honestly I was more concerned about meeting with Ms.+ Mr. L. We called a friend and my dad to ask some questions, turned a faucet valve that was connected, let hot water run out in the sink, placed a bucket under the leak, and left to go meet them. 

Meeting went great - picked up Chantix Rx and then grabbed dinner with both of them and their little one. Afterwards we had a get-together at a friend's house where it was pretty paramount that we show our face. It's a close friend (he introduced us!!!) and we think we weren't invited to his wedding a month ago because we have been soooooo MIA - we hadn't even met his now-wife until last night. They had been dating for a little over a year. When we returned home much later we found the leak still going strong. A little digging around outside and in the garage led to the discovery of another valve to turn off ALL water. The first one turned out to be just for hot water. 

I hope the Chantix works. It helped me quit smoking years ago, but I know some people report serious side effects and can't take the medication. Chantix is not covered under their insurance either, but Mr. L's doctor gave him a $75 coupon. Oddly enough, Ms L's only have her a $40 one. Weird huh? We were able to use the $75 one. 

Now we go full speed for the other things. On the schedule of phone calls tomorrow is lawyer (required by our clinic), blood work for all, and psych tests for all. Wait what was that last part??? Yea, our third party coordinator said that we would have to ALL have a psych eval. Having a psych eval doesn't bother me (it probably should!), but after 2 failed surro cycles in India I really don't understand why it is necessary. I sent an email to our third party coordinator asking about the necessity (ie. requirement), of this for my husband and I. If it isn't required then I really don't see the need to spend additional monies on it. We didn't have it in India and I don't feel like we need it now. (The surrogate did have one in India and I understand why it is required here.) 

And I'm not sure how we haven't really talked with the financial coordinator at our clinic thus far, but I guess we need to schedule that as well. Sigh. At least then we will know better what to expect. Our original information from the clinic did not include costs for surrogacy. That becomes an entire new list of line items. 

I don't know how I'm going to take off all this time from work. All day psych evals? Appointments at an attorney office? More medical stuff? I don't know how our surrogate is going to be able to take the time off either - though of course we will give her money for any missed work. She starts a new job next week and while we are both super-duper tight with her boss, I think it's still awkward to take time off when you first start at a company. Even if the boss is totally ok with it. 

Sigh. So that's the update. Prior, I steeled myself to expect the worst with her hysteroscopy/HSG tests and now I feel unexpectedly elated. Even after feeling all doom-and-gloom about the cigarette stuff for the last week and a half. I'm still going to be cautious about getting too excited with regards to that, but I've let myself be hopeful for the weekend.

Course not having water it beginning to suck. Guess I should put "plumber" on my list of phone calls for tomorrow. Wouldn't that be funny if that was the phone call I forgot to make tomorrow? (I refused to pay Sunday plumber rates.) My BFF called earlier and said we could take a shower at her house if necessary. Since she could smell me all the way from there... She's a keeper. :-) 

Saturday, November 3, 2012

On Feeling Alone

I know that there are TONS of folks that face infertility, but damn it, sometimes this path feels so lonely.

  • The hormones.
  • The feeling less of a woman.
  • The weight gain and the realization none of your clothes fit. 
  • The money. (You can't even think of buying new clothes).
  • The daily meds or supplements.
  • The feeling of failure.
  • The limitations of what you can eat/drink/do to make sure you have "the best chances".
  • The no baby. 
  • The doctor visits
  • The pretending everything is fine.
  • The pretending like you really want to hear and be invited to every baby event.
  • People asking "so when are you guys going to have kids?"
  • The CONSTANT reminder that you are old (or at least your eggs are). 
  • The roller coaster that just won't seem to stop no matter how long you've been on the ride. 
  • The worry that wanting to use your own eggs raises the chance of health issues in your child. 
  • The worry that I'm becoming obsessive or annoying.
  • Worrying about my in-laws
  • The invasive procedures
  • The worrying over every little unknown pain will cause a problem
  • The money (yes, this is big enough to write twice).
  • etc...

My BFF is a guy and I don't think he can completely relate. Actually, I take that back. His situation is worse.
Me: "This sucks. I can't carry a baby. My eggs are getting old. And we pay a fortune just to be on this stupid roller coaster ride."
BFF: "I think my MS, being single, no chance of kids, and the eventually that my walker requirement will turn into a wheelchair requirement triumphs. My insurance alone is over $900 a month and I can't work."
Me: "touche. Let's go grab lunch. It's on me."

My second BFF just had a baby, so it's not like I want to rain on her parade or have her feel like she's walking on eggshells. She's so totally awesome and her baby is as cute as cute can be.

My husband, though tremendously patient with me, doesn't alway understand how this physically and emotionally this affects me. And as many of you know, it's a doozy  Nor do I, having been a parent before and not from a culture who puts the highest importance on having children, understand all of his internal turmoil. On dealing with the emotional side of IF, we probably both stuff it down in order to appear brave for the other.

If I tried to discuss things with my mother, then she would be incredibly sad worrying about me. That would only add to my stress. No thanks.

In blog land I sometimes worry that I am offending others. In my posts and sometimes my comments; both farthest from what I am actually trying to do. Just trying to convey my thoughts at a particular moment in time. Or trying to avoid feeling sad. Or trying to be helpful. Or funny.

In work and with friends, I'm limited to what I can say. Sometimes because I'm trying to protect myself (lest I am fired for going through IF like I alluded to here) and sometimes I just don't want everyone knowing my business. Nor do I have the desire to be the discussion of gossip as can happen when you have a large group of friends. Nor do I want to be the person that constantly complains and whines as that drives me crazy. Little bits are fine, but when you run into that person who has had problems for soooooo long, it becomes exhausting to talk to them. I certainly don't want to be "that" person.

Yet life goes on. Everyone is busy discussing their kids, sharing fun photos, and doing fun family projects. I'm sure it's a grass-is-greener type thing (after all, we've had some AMAZING travel adventures over the last 4 years), but if I see one more Luvs commercial on Hulu, I'm going to scream.


Tuesday, October 9, 2012

Failed again

The Beta hcg levels went down to 15: chemical pregnancy, ie. failed cycle.

I knew before I even read the email. I knew when my phone went off at 2:55am to let me know that my BFF's baby made its debut. I knew yesterday when I made my limbo post yesterday, I just didn't want to believe it.

This is the part where I feel like a failure.

My husband and I hugged each other for a long time this morning, but then barely spoke after he got out of bed. As hard as this is for me, I think it's harder for him. I have a son - he does not. He has wanted children from the very beginning and I had to disclose the problems we would encounter (my cryoablation) when we had only been dating 3 weeks. His only question then was if I still produced eggs...

He can't console me and I'm not sure how to console him. A selfish part inside wants me to yell out "you can still have a biological kid - it's ME that's the problem". I wonder if his family, or even he, thinks that marrying me was a bad idea. An illogical part of me whispers that he will leave. What do I bring to the table?

I feel broken.

I can't even do the basic function of a woman.

I haven't cried and just walk around pretending everything is fine. My mom says she is devastated and wondered if this is just what clinics do to get more money out of you. I have to be the strong one and explain the plain fact that clinics in India get more money on successes than failures. Not to mention attract more clients.

Last week I signed up for a seminar tonight at my clinic here in Atlanta. It's a seminar to discuss infertility options, get a free AMH blood test, and get free one-on-one with one off the doctors. I'm curious about my AMH since the one test in India came back so low, thus I will go. Talking with a doctor will help too. I'll probably avoid sitting next to the peppy people. Shouldn't be hard. I've noticed that everyone avoids people with recent failed cycles. I guess it's like the pregnant girl in high school - they don't want to "catch" it. 

Monday, October 8, 2012

Still in Limbo

We were suppose to get the update today. We didn't. Which is not surprising, because sometimes that's just how it is. 72 hours will give a better picture of where we are at anyway.

Woke up a 4:38am and started checking email. Realized around 11am it wasn't going to come. Hopefully I will wake at a normal time tomorrow morning.

Rather than write out a long post (and rather than reread what I wrote yesterday), I will just recap what I sent to my mom this morning.

yea, I know she is looking for the hcg value to double every 48-72 hours, so she may have not been able to do the test today, knowing that tomorrow is just as good (if not better.)

Just as an FYI,
At 14 days
any value over 25 is considered pregnant. 
any value under 5 is not preg
5-25 is indeterminate

Ours was 27.44
The average for 14 days is around 100. The value doubles every 48-72 hours (for many many weeks.) If you do not see the value doubling, then it is cause for concern that the growth may have stopped. This can be from ectopic pregnancy or that the embryo has just stopped growing and the body will usually miscarry it naturally. Happens all the time and of course at my age the chances of miscarriage is higher.

So I guess we are waiting to see if it is still growing properly. From what I understand, a low value could have been caused by the embryo implanting itself a little late, or it could be the embryo that fertilized late (1 out of the 3 did.) .  Healthy babies have been born with initial low hcg values, but it significantly lowers our chances. A statistic I saw said that <35% will be successful when the value is between 25-50 at the 16 day mark. Low hcg has no bearing on the baby's health after it is born.  If it is growing slowly, then there could still be chance and they will just monitor every 2-3 days until the 5-6 week mark when an ultrasound would show if there is a gestational sack and if it is empty. At least this is how it is done in the US. I haven't asked her yet. 

Literally in limbo and I guess it could go either way.


Sunday, October 7, 2012

New Advances in Infertility

Each of these mouse pups was born from an egg scientists created using embryonic stem cells. 
On thursday, NPR had a fascinating story on a breakthrough discovery for infertility. Even more fascinating  they did it with induced pluripotent stem cells (as opposed to the controversial embryonic stem cells). If they can do it for women, then not only will it reduce/eliminate the biological clock worry, but also provide a solution for the dreaded "unexplained infertility" diagnosis that plagues so many women. This will be a game changer for future generations of infertile women. There are even great implications for men with sperm issues, as well  as the many hurdles faced by the LGBT community.

Alas, this will not apply to many of us currently in the throes of infertility. All is not lost. Many doctors are currently working on various cell technologies that apply to infertility. Autologous Endometrial Coculture is one example of a technology promising encouraging results. What does all that fancy wording mean? The short of is that they take cells from the lining of a woman's uterus and use them as a more natural environment for fertilized eggs than the previous methods. Studies have shown that in certain cases embryo development is improved, as are IVF success rates.

Dr. Patel's clinic in India is working with a similar concept: certain clients can qualify for the case study in which natural cells from the IVF patient are used to surround the egg pre-fertilization. They are seeing an increase in fertilized eggs and while it's too early to determine if this results in actual healthy babies born, I can say I was very impressed to learn that 3 out of 4 of my eggs were fertilized with this method. There is more to this method than I am [purposely] describing, but that is better left to the professionals or perhaps, when I can be less emotionally attached to the subject matter.

I have no idea if this will help the quality of my eggs/embryos in the long run, but it is still very exciting. My first cycle ended up with 2 eggs and only 1 of those fertilized. That 1 egg took over 24 hours to fertilize. On my second cycle (with the new protocol) I had 4 eggs extracted and out of those 3 fertilized. Like my first cycle, one of those was a late bloomer, but maybe it's the one implanted now and thus causing a lower hcg. Apparently my case is not an anomaly as the Akanksha Infertility Clinic is seeing really encouraging results with women that qualify for the case study. Even if it doesn't work for me, I will be really excited if this helps improve success rates for women in general.

Science is so cool. 

Friday, October 5, 2012

Here we are again - 2ww

Formula for moment of inertia
from: http://www.wikipremed.com/image.php?img=010105_68zzzz111100_12002_68.jpg&image_id=111100


I have about 100 things to write about, but right now I'm stuck with inertia over our pending results for our 2ww. My husband is out of town until Saturday night, and as much as I would like to say if the email comes tomorrow than we will wait to read it together, it's not gonna happen. If the email comes, I'll read it. This last week I've felt like a pressure cooker with every emotion beginning to boil up.

For some reason I thought it was coming on the 6th, but my husband thought it was the 7th or 8th. He remembered that the clinic is normally closed on Sundays, so if we don't get an email tomorrow then it will probably be Monday. In fact, if it isn't in by the morning, then we probably won't get it till Monday morning because of the 9 hour difference: surrogate tests should be done by my late morning time.

Truthfully, if it's bad news, it's probably best that my husband and I don't read it together. Like many men, he doesn't do well with tears and I know that this entire process is probably harder on him then it is me. At least mentally. Never-the-less, if it is bad news then I will surely cry and the last thing I need to add to his woes is my tears. Last time we went through a cycle it was super hard for him with every up and down and when we got the bad news, we could barely speak. I had prepared myself better for the bad news, but not enough that I could console him.

Last time I didn't even tell my siblings and close friends when we got the bad news. I just didn't want to talk about it. My husband called his family and I emailed my mom. She was pretty sad, so I stayed strong. A month or two later everyone else eventually came around and said "I guess it wasn't good news." By then I was already in  mode for my new cycle and had completely forgotten I didn't update anyone. This time we've told more people and gave promises of an update when we find out.

The update is hard enough, but it's the feedback that will really get me. I just don't want to have to have one-on-one conversations with each person on how they are sorry it didn't work out. Look at me. I'm already thinking the worse. I can't help it. Need to think positive thoughts. I left India on a super-positive note and I need to keep it going.

Sigh. Easier said than done. I have so many things I need to work on, but can't seem to do any of them. 2 ww. Bring it. 

Thursday, September 20, 2012

Egg total = 4

Less than I thought for 12 good follicles, but still twice as many as last time.

Today we go and see if they fertilized. Already my stomach is a tad in knots. 

Tuesday, August 28, 2012

Special Lady Cocktails

When I first was swept up by the internet infertility tornado, I remember reading forum posts from other hopeful women. Falling on a theme (as I often do), I obsessed over the ridiculousness of women taking all kinds of crazy pills - usually without having a doctor recommend them. OMG! DO YOU JUST TAKE ANYTHING YOU FIND ON THE INTERNET??? Some posts swore by the helpfulness while others confessed that they worried it may have hurt. Once discovered, some doctors gave full-on lectures how it was not appropriate for the poster's situation, only to find out that someone else (usually another doctor) in their clinic had told them to take it. Truthfully, I was personally affronted that such naivety and desperateness could drive women to arbitrarily take anything in an attempt to conceive.


The picture above is from MY house. That's right, Ms. Holier-than-thou is ...well, the same as everyone else.

At first it started small. My first pill was THE PILL, and I was told I would have to take it by my Indian doctor to make sure I was synced properly for my IVF treatment. Fair enough. I called my OB/GYN and promptly got a prescription. Let me mention here that I do not like taking birth control pills (bcp) as not only does it make me gain weight and experience occasional nauseousness, but sometimes I experience additional glum side effects (depending on the brand). Fine - whatever - I set my alarm on my phone to give me a daily reminder; particularly because my history of remembering to take medicine on a daily basis is pretty dismal. Especially BCP. Our local IVF doctor also advised to add a pre-natal vitamin (another item bound to make me nauseous) and I immediately relented as I ran to our local Publix.

Baby aspirin and acupuncture were added to the regime - the latter being something I normally would have scoffed at a year earlier. Doctor semi-recommend it and so I shelled out the cash. My husband gave me the big-eye, but I'm guessing he recognized my fervent look and said nothing. 100 bucks a pop for 6 weeks = not cheap. What can I say except I wanted no regrets.

IVF treatment #1 was dismal. 2 eggs retrieved, only 1 fertilized. Even that 1 took a damn long time to fertilize.

Now I am prepping for treatment #2. In typical fashion, I have been obsessively researching similar cases. Not just blog posts, but academic papers and any type of current research I can lay my grubby little eyes on. A clinic in India recommended 25mg of DHEA for 3 months. I rush to pull up the scientific documentation and realized all of the research is really based on a tiny Tel Aviv study. The study showed a significant difference in live birth rates with women who were poor responders and took 75mg of DHEA for 40 days vs women who did not. A follow-up study had additional encouraging results. Screw the 25mgs -I only had about 40 days till cycle, I was going to go full boat - 75mgs it is! [I would like to make a note here that I was not able to take the full 75mg initially because of side effects. I had to build up and even now I have minor side effects.]

Next I read how melatonin could also help woman with poor ovarian reserve and immediately I was hunting down more articles and recommended amounts. 3mgs seemed to be the magical number, but that amount knocked me on my butt. Still 1-2mg was doable and thus it was added. Combining it with the DHEA means I sleep really well, but I'm groggy as all get-out when I wake up. Heaven help me if I don't get a full 8-9 hours. Oddly enough, my friend says she takes 10mg all the time and it barely helps her sleep. What can I say? I'm a lightweight.

Did I stop there? Heck no! I was on a search that day and after reading some articles (which I can not find at the moment) regarding myo-inositol, my amazon shopping cart increased. Among other things, myo-inositol was suppose to help women with cyst issues and a giant cyst almost caused a no-go last cycle. My OB/GYN found a cyst last year and I began to wonder if some of the pain issues I had felt over the last year were cyst related. GIVE ME MYO-INOSITOL NOW!!!

There were a few other things on the list, but these 3 new items had good scientific data to back them up and they applied to women with similar (if not exact) conditions. The other pills I noticed my fellow women-at-arms were taking were either less scientifically regarded or didn't apply to me. Besides, as I mentioned before, I'm a light weight and I wanted to see how I was going to handle this new concoction.

Which brings me to last week. I'm not quite sure HOW I ended up at the Rainbow (read: hippie) Grocery store - but all of a sudden I found myself at the cashier's stand with CoQ10, some fancy fish oil supplements, and yes even some Royal Jelly that was well hidden in a jar of honey. And some awesome low-sugar dried mango. And a yummy nut mix. And Activated Charcoal that I told myself would be good to have on hand if my dogs ever get into something they shouldn't. Somehow I think my subconscious was trying for an easy excuse to get some for me. You know. Just in case.


"Just a spoon full of sugar..." (or honey) 

Friday, August 10, 2012

What makes the elephant charge his tusk in the misty mist, or the dusky dusk

Dorothy meets the Cowardly Lion, from the first edition
From The Wizard of Oz,  by the Cowardly Lion
Courage! What makes a king out of a slave? Courage! What makes the flag on the mast to wave? Courage! What makes the elephant charge his tusk in the misty mist, or the dusky dusk? What makes the muskrat guard his musk? Courage! What makes the sphinx the seventh wonder? Courage! What makes the dawn come up like thunder? Courage! What makes the Hottentot so hot? What puts the "ape" in apricot? What have they got that I ain't got?

When I went to India in June for my first IVF treatment, a few people remarked how brave I was. Truthfully, it didn't feel brave. At all. Not even a tiny bit. I have been to India twice before and besides family living there and being able to check things out for us, my husband (who is Indian) traveled with me. He's fluent in Hindi, the national language, and knows several other languages. He can tell by listening to someone where they are from in India and of course is familiar with many customs. When I see others take this journey to India, I feel far less brave than them. Even if the illusion from those here at home is something different.

What I realized last trip, is that I used my husband as a crutch - as did many of the locals. Most people preferred speaking to him in Hindi and it seemed an effort (and slightly rude) to constantly interrupt them with "hey there! English please!" (Note: this was never a problem with our doctor, who always spoke in English and spoke equally to both of us.) I'm sure part of it also had to do with the patriarchal society over there that some are more comfortable with (and no that is not a ding against India as we certainly have our fair share of it here in the US).

The funny part is that I have back-packed through Europe with my 9 year old son before - with only a multi-lingual phrase book, rail pass, basic necessities, and a loose plan that wasn't adhered to. I've been to countries all of the world and navigated myself without too much hullaballoo. I'm more inclined to seek different and daring adventures when on my own, then when not. Let's just say that "impulsive" is a much better adjective to describe me than "overly cautious". Incidentally, this makes my husband a great balance for me when I might otherwise do something truly stupid.

Oddly enough, my husband tends to see the more reserved me when we travel. Especially in India where I'm more reserved around him and family lest I make some huge social gaffe that could reflect upon him or make my in-laws question my good sense. Of which, I tend to have very little of at times. His family are relentless teasers, something which I don't wish to arm them with more fodder and something I really didn't have a lot of growing up. (My step-dad is a relentless teaser as well, so I am getting used to it.) What this amounts to is a less daring attitude when I am with my husband abroad. This actually can be a good thing such as the following conversation will allude:

Me: "Oh look! MONKEY!!!!!" (start fiddling in my purse so I can get either piece of fruit to feed it or my camera)
(Large monkey looks at me for a second from 10-12 feet away.)
Hubby: "Walk away NOW"
Me (whining and walking away): "But it's a MONKEY. I hardly ever see monkeys. And never this close." (wistfully look at monkey while still digging in purse.)
Hubby (trying to get me to hustle): "If monkeys make eye contact, they sometimes attack. Many carry rabies. You can't randomly go up to wild things - especially in India."
Me (pouting): "But I like monkeys..."
Hubby: "Yes, I know. Come on."
(Monkey ducks down alleyway with several of his friends.)

The point of this post? My cycle in September means I will be traveling to India alone. My husband will meet me there after 2 weeks, but before that I am on my own. Well, except for the part of family meeting me at the airport to drive me some portion of my trip. For some reason, hubby and family were freaking out about that and I acquiesced. They wanted someone to stay with me the entire time, but I told my husband "no". I love my Indian family, but it would be far more stressful for me to have one of them there at all times than to just be by myself. Being super hormonal and trying to impress in-laws is just too much pressure. I'd rather fumble around and deal with the frustration of being alone in a foreign land. I'm introverted anyway and that is my comfort zone.

Am I scared? No and Yes. My impulsive behavior tends to make me forget about being scared until I am in the moment, or until I deeply think about it: "ummmmm, maybe this wasn't such a great idea.Opps. Too late now." Especially about things like traveling, or jumping off bridges into who-knows-how-deep water, or walking my dogs at 2am because I figure we all need the exercise. More so what scares me is when other people have fears - then it can bleed into my veins. (That and interviews - those things terrify me!)

However, using a crutch over the last few years has made me more into a cowardly lion. Maybe part of it is having someone else speak the problems that I don't consider. Maybe part of it is knowing my impulsive behavior can get me into trouble. Maybe part of it is that I haven't done things alone in the last four years. Somehow I think it is all of this, and much more.

This time, I will be embarking on a real adventure in India. The idea of it makes me feel braver, something which I really need of late. I have great admiration for all of the bloggers who have gone this route alone, and without incessantly whining, they embrace a totally different culture with only a nod or a joke to frustrations they encounter. Hopefully, I will muster the courage and grace that I have seen radiate many before me.

As Dorothy once hinted at to The Cowardly Lion, "You were courageous all along. You just didn't know it." Let us hope so. 

Monday, July 30, 2012

RAAAAWWWWRRRR


Ok, confession time: I'm a tad afraid that my hormones are making me feel a little roid ragey. I'm not used to taking birth control pills (BCP) and I'm certainly not used to taking DHEA, both of which contain hormones. This morning I feel unusually weepy, and often I feel unusually RAWR!!!! Add that I am probably PMSing and it's a mighty good thing that hubby is at the office today.

I'm hoping it will level off soon; the bad parts, not the good parts. On the good side I think I am getting darn good sleep at night (not normal for me) and I don't feel exhausted during the day like I normally do. DHEA is supposed to help people with chronic fatigue syndrome and I am wondering if the deeper sleep at night is why. How long has this been a problem for me? My mom still tells stories how she worried I would be kicked out of kindergarten because of my requirement for 2+ hour naps.

If the Fedex man likes me today, then I should receive my Melatonin. Hopefully that won't throw me back to wanting to sleep all the time. Sigh.  I wonder if I should go back to acupuncture. It didn't seem to help one bit and I wonder if the occasional massage wouldn't be just as effective (and appreciated more.) Then again, the acupuncturist also could help me wade through the RAWR.

If someone had told me a year ago that I would be taking all kinds of weird supplements and dropping $100 a pop to the local acupuncturist, I would have told them they were off their rocker. Next thing you know I'll be traveling to a rural town, in a foreign country, without my husband, navigating the intricacies of basic every day things, for the privileged of shots in my belly. Oh wait...

Sunday, July 15, 2012

"Assume" makes an...

When I first started reading IVF blogs, I came across an elegantly written piece about why adoption was not the choice for everyone and how the poster was sick of people suggesting it. It was long post, and I wish I remembered who wrote it, but it was good. Really, really good. The post outlined perfectly why not only was it not an option for them and the reasons why it was not an option for many, but also how the constant mention added hurt to an already very difficult time.

That's what I felt like yesterday with yet another hint that we should consider donor eggs. 

I'm sure it wasn't intentional, the person probably thought they were being helpful - they weren't. At this time, egg donation is not an option for us. Period. Maybe that will change if I have additional failed cycles and other things fall into place, but 1 failed cycle does not = go straight to donor eggs for us. 1 failed cycle that I may add, produced a high grade embryo. I may not have responded as well as we had hoped, but that's what 1st cycles are all about - right? Learn how you respond and adjust.

Both my husband and I are educated people and we know exactly where we stand with odds. We are fortunate enough to have access to published information that is reserved for academics in the field, are avid researchers, and even have access to data that very few others are privy to. If anything, one can say I have analyzed data to death as data is my field of expertise. We do not even look at data the way a layperson does because we have a statistical and data background that let's us read beyond sheer numbers. We are well aware of EXACTLY where we stand. 

Besides the warm and fuzzy of having your own genetic child, we have bigger issues on why it's not an option: my husband is not a US citizen. We live in the US. An egg donor means our child would not be a US citizen and we could run into some very serious issues of not being able to return to the US or a child visa expiring while we are in the US. There are 20 things that could go wrong and quite frankly the added cost of it all (me not being able to work while this thing sorts out) is too much of a limbo for us. To badly paraphrase the great Jack Nicholas, "Go sell limbo somewhere else, we're all stocked up here". 

We could wait for my husband to become a citizen, but that can take a lot of time and his international travel could be limited during the process. That may or may not cause issues with his work and it would certainly cut out travel to India, something we would prefer not to do at the moment given his parents are elderly, have had health issues, and live in India. 

There are a TON more issues of WHY we choose to try to use my eggs right now and quite frankly I don't feel like listing them all at the moment. Between a baby shower and a email yesterday, I'm spent. The email was from a popular clinic and even though I have never worked with them before and have only had 1 failed IVF, there was a blatant suggestion that I consider the egg donor route. I'm sure it wasn't meant this way, but it felt the same way that all of us IVF'ers do when someone suggests that we quit being selfish and go adopt a needy child. It's not one of our current options and people shouldn't assume that it is. 

I seriously thought my tears were going to flow in front of everyone when I naively and happily opened that email from the clinic. In the middle of the baby shower no less. Let me clarify that I think the egg donor route is an excellent option for many people and I fully support that decision, - but for now it is not for us. 

Monday, June 18, 2012

A New Day

Yesterday sucked. Really really sucked. We had our Day 6 scan and it revealed only 4 follicles maturing on one side and 2 tiny ones on the other one. Basically I'm a poor responder.

If you're keeping score, at my original appt in the US, I had 16 follicles. 16 put me right at the next level of a better success rate. Not the highest, but still fairly good. On our first appt here in India, my initial scan only revealed 3 and a big cyst. Aspirating the cyst revealed 14. 14 put us in the fair range, but it was a hell of a lot better than 3. I don't know if they'd even go through with 3. Crisis averted.

But now we are down from 14 to only 4 responding. I expected 70% (as that is what is the norm) and thus 4 is crushing. 4 combined with my age drops us down again. Immediately I started ferociously pulling up stats I have saved to my iPhone, and then I stop. I don't want to know anymore. Neither my husband nor I am religious and it is times like these that I wish I could be. For the moment, hope has left me and and the realist in me wishes I had not let the excitement of the process overcome the knowledge of the likelihood of success.

How do women go through this roller coaster over and over? I'm not sure how many times I can, knowing every month our chances decrease as I age. I'm not sure how many trips to India we can do with me not working. I'm not sure if I can get an exception to my visa to return in a month (I have a 10 year tourist visa from 2008) or instead try for PIO cardholder status (husband is still considered Indian citizen). I'm not sure of so much.

If this seems early to have lost all hope, then realize these were my thoughts and feelings of yesterday. Today is a New Day. The doctor has doubled my dose and I am cautiously optimistic.